ImGonnaLoveYouThroughIt

ImGonnaLoveYouThroughIt
posted a quote
March 12, 2012 10:02pm UTC

Sorry I didn't get to write yesterday. Witty didn't really seem to want to work on my interent.
So I took the opportunity to think about something to write about EB.
My mom thought it was a good idea to watch My Flesh and Blood.
It was a documentory from a few years ago. It was terrible.. I hope Jessica doesn't ever have to go throughall that pain.
EB will actually fuse your fingers and toes togeter unless you wrap them right.

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ImGonnaLoveYouThroughIt
posted a quote
March 10, 2012 3:29pm UTC

I was going to tell you another story about Jessica, but I think its more important that I tell you about what happened this morning. It is a Saturday I so I didn't go to school. I walked in on my mother earlier today sobbing beside my sisters crib. Shocked, I asked her why she was crying. She said it was because she thought she was a horrible person. She said she wished she would have had a miscarriage so Jessica wouldn't have to go through all this pain. I love Jessica, but when I see her in this pain, I also wish she wasn't here..

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ImGonnaLoveYouThroughIt
posted a quote
March 9, 2012 4:28pm UTC

I decided today that i'm going to make a Witty journal.
Its not about me.
The journal is going to be a about my little sister Jessica.
She was born two months ago and is a butterfly child.
I cried for weeks.
If you don't know what butterfly children are, search epidermolysis bullosa.
I swear I will write in this journal everyday.
I want to remember her as she was, and let others remember her..
Most butterfly children don't live past 30.
Let me start by telling you about the first time I held Jessica.
She was tiny, so beautiful. When I held her, I gave her blisters. It made me want to put her down and never hold her again. I can't imagine the kind of pain she is always in..

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